Juvenile Myositis (JM), including Juvenile Dermatomyositis (JDM) and Juvenile Polymyositis (JPM), is a group of rare and life-threatening autoimmune diseases, in which the body’s immune system attacks its own cells and tissues.
Weak muscles and skin rash are the primary symptoms of JDM, while muscle weakness without a rash is the primary symptom of JPM.
Even within these designations, JM affects every child differently. Some children experience a mild form of the disease, while others follow a more severe and potentially more debilitating course. Some of the more onerous secondary symptoms are calcinosis, digestive (GI) tract complications, vasculitic ulcers and contractures.
To learn more about Juvenile Myositis and find out how you can partner with CureJM and AlsoTouch Foundation, please visit HoopsforHopeTournament.org.
Christiana Powery was like many other 7-year-old children when she first got sick. She loved to play basketball, do gymnastics and watch the popular cartoon “SpongeBob SquarePants.” But in 2002, she began feeling pain in her wrists - the little girl who loved to do cartwheels and shoot hoops with her dad was steadily overcome by aches in her joints. The doctors determined Christiana had juvenile rheumatoid arthritis and gave her medicine so she could continue to play sports and go to school in Almaden Valley. But around her 10th birthday, Christiana became weak again. Once again, she couldn’t play. “The arthritis was in remission, but she got another autoimmune disease,” her mother said. It took seven months to diagnose Christiana’s juvenile dermatomyositis (JDMS), an autoimmune disease that breaks down the blood cells in all muscle systems. Her blood cell levels fell to a dangerous point, “… She went from being an athlete to being in a wheelchair.” The 10-year-old girl wasn’t responding to treatments of steroids and medications, and later was also diagnosed with thrombotic thrombocytopenic purpura, a rare blood condition characterized by formation of small blood clots, causing a low platelet count.
Christiana died in December 2005.
Read more about Christiana and find out how you can can help keep her memory alive at HoopsforHopeTournament.org
[REGISTRATION & DONATION LINK IN BIO!]
Presenting the 1st Annual Hoops for Hope East Coast Tournament! The 3v3 tournament will be held at Baruch College in NYC. There will be different divisions starting from high school all the way through adults (beginning, intermediate and advanced). A portion of the proceeds will benefit the Also Touch Foundation, a non-profit fund in memory of Christiana that will then benefit other organizations that focus on finding a cure for diseases Christiana suffered from. Another portion of the proceeds will go to CureJM, a nonprofit focused on finding a cure for Juvenile Dermatomyositis (JDMS) and Juvenile Polymyositis (JPM), the rare and life-threatening autoimmune diseases collectively known as Juvenile Myositis. Approximately 2 to 4 children in a million in the United States are diagnosed with JM each year.
At the tournament, there will be a silent auction, concession stand and other options for fundraising for AlsoTouch and CureJM.
Some of the #alsotouch team acting silly at the rest stop! 😂 #cacoastclassic #day6 #rememberchristiana
Rollllin' through the grapevine! #alsotouch #rememberchristiana #day6 #cacoastclassic
Morro Bay Rock! #day5 #cacoastclassic
Lunch time! And we're HUNGRY. 😋 #day5 #cacoastclassic